Posted on 26 Comments

Hope for Punya (A Rare Condition and Searching for Answers)

Punya is diagnosed with Phelan-Mcdermid syndrome and does not currently speak. Ananya, her sister, is dedicated to learning how Punya communicates so …


26 thoughts on “Hope for Punya (A Rare Condition and Searching for Answers)

  1. Hi everyone! I wanted to share a bit of the "behind the scenes" from when I film with siblings, particularly children. When communicating with each child, I make sure to ask them questions pertaining to themselves. Such as "What's your favorite food?" or "What's your favorite thing to do?" I want to make every sure each kid knows I have a genuine interest in them. Not all of this footage is included in the final cut, but I just wanted to share this bit of info as I think it is important that we make all children, disabled and nondisabled, feel loved and accepted!

  2. What a wonderful mother. That woman has more strength in her little finger than I'll ever have. Punya is blessed to have such a loving and caring family.

  3. Lots of love and prayers💕

  4. The mother and father reflection how beautiful.

  5. You are a wonderful, loving family! 🙏🏻 to you all. Have you looked into research with implanting electrical stimulation to help negate or control the Punya’s seizures? Your youngest daughter is wide beyond her years! I thought her insightfulness about the both of you, mom & dad, to have more time together was so awesome for her to elaborate! I pray that science will bring hope for Punya! Thank you for sharing your account of the struggles that you must deal with everyday, and being an example
    for other young couples that maybe be trying to cope with what you have all learned raising your beautiful daughters!

  6. Beautiful family! God bless you all abundantly. Praying that Punya gets healed soon for nothing is impossible to God.
    "Then they cried to the Lord in their trouble, and He saved them from their distress; He sent out his word and healed them, and delivered them from destruction."
    Psalm 107:19,20

  7. Punya has a very good communication partner, her loving.sister. So AAC may work.

  8. Dear Parents,
    I am a special educator. You are excellent parents however why didn't try AAC( Alternative Augmentative Communication)?

  9. Что здесь происходит, кто-нибудь может объяснить ❓🤔❓

  10. The dad said they are seeking treatment. I wonder if they have given stem cells much thought. Also, if they have a great MAPS doctor.

  11. Prophet Bajinder Singh ministry pls watch and you will benefit.

  12. I wd suggest you to watch Pastor Bajinders miracle programs for her healing.

  13. The way Punya cuddles with her dad❤️❤️❤️❤️❤️❤️🥰

  14. Ayurveda treatment is good .

  15. Jesus bless this child with your full of grace

  16. Dear mam if yu can do rajyoga meditation from nearest brahmakumaris centre then it will be very beneficial for Punya.

  17. Yu are such a lovely family.I am sure that God will give yu some solution about Punya.She will be normal soon.I will pray for her.

  18. When god looking for best place for punny he selected her parents that because only that two can give hapnyness for her be proud to be gods sclection

  19. Punya is so well loved and so well taken care of. Each of them look at her with so much love in their eyes ❤️ Beautiful family!

  20. What an inspiration: "Never lose hope." Thanks for asking that question, Chris, and thank you to Punya and Ananya's parents for being a positive example to so many!

  21. "She is a human being, we don't understand her but she understands what's happening to her" That is big empathy!

  22. Everyone has their purpose, some people aren't able to communicate but their perspective but could be life changing to all of us.

  23. Hopefully soon Punya will find some type of treatment or medication to stop or atleast reduce her seizures. If something is out there, we know her parents will find it. Stay strong- 🌷Help for Punya

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