Posted on September 23, 2021September 23, 2021 by admin — 26 CommentsHope for Punya (A Rare Condition and Searching for Answers) Punya is diagnosed with Phelan-Mcdermid syndrome and does not currently speak. Ananya, her sister, is dedicated to learning how Punya communicates so … source Post navigationPrevious post: The Sad, Predictable Limits of America's Economic RecoveryNext post: Biggest & Thickest Buds on Cannabis using This Organic Hardener & Sugars 26 thoughts on “Hope for Punya (A Rare Condition and Searching for Answers)” Special Books by Special Kids September 23, 2021 Hi everyone! I wanted to share a bit of the "behind the scenes" from when I film with siblings, particularly children. When communicating with each child, I make sure to ask them questions pertaining to themselves. Such as "What's your favorite food?" or "What's your favorite thing to do?" I want to make every sure each kid knows I have a genuine interest in them. Not all of this footage is included in the final cut, but I just wanted to share this bit of info as I think it is important that we make all children, disabled and nondisabled, feel loved and accepted! Reply Rob Kurtz September 23, 2021 What a wonderful mother. That woman has more strength in her little finger than I'll ever have. Punya is blessed to have such a loving and caring family. Reply waytruthlife k September 23, 2021 Lots of love and prayers💕 Reply Building Dreams September 23, 2021 The mother and father reflection how beautiful. Reply Monica Enriquez September 23, 2021 You are a wonderful, loving family! 🙏🏻 to you all. Have you looked into research with implanting electrical stimulation to help negate or control the Punya’s seizures? Your youngest daughter is wide beyond her years! I thought her insightfulness about the both of you, mom & dad, to have more time together was so awesome for her to elaborate! I pray that science will bring hope for Punya! Thank you for sharing your account of the struggles that you must deal with everyday, and being an examplefor other young couples that maybe be trying to cope with what you have all learned raising your beautiful daughters! Reply Bisha Cyriac September 23, 2021 Beautiful family! God bless you all abundantly. Praying that Punya gets healed soon for nothing is impossible to God. "Then they cried to the Lord in their trouble, and He saved them from their distress; He sent out his word and healed them, and delivered them from destruction."Psalm 107:19,20 Reply Nirmala Gopikrishnan September 23, 2021 Punya has a very good communication partner, her loving.sister. So AAC may work. Reply Nirmala Gopikrishnan September 23, 2021 Dear Parents,I am a special educator. You are excellent parents however why didn't try AAC( Alternative Augmentative Communication)? Reply Neha Kak September 23, 2021 Love this family, Reply Samira Sabina September 23, 2021 Что здесь происходит, кто-нибудь может объяснить ❓🤔❓ Reply beautifulibra September 23, 2021 The dad said they are seeking treatment. I wonder if they have given stem cells much thought. Also, if they have a great MAPS doctor. Reply Letitia Dsouza September 23, 2021 Prophet Bajinder Singh ministry pls watch and you will benefit. Reply Letitia Dsouza September 23, 2021 I wd suggest you to watch Pastor Bajinders miracle programs for her healing. Reply Shaina September 23, 2021 The way Punya cuddles with her dad❤️❤️❤️❤️❤️❤️🥰 Reply Harsha S September 23, 2021 Ayurveda treatment is good . Reply Cleston Fernandes September 23, 2021 Jesus bless this child with your full of grace Reply Subbianachari Manikantan September 23, 2021 May God Bless you. Reply Anjali Jain September 23, 2021 Dear mam if yu can do rajyoga meditation from nearest brahmakumaris centre then it will be very beneficial for Punya. Reply Anjali Jain September 23, 2021 Yu are such a lovely family.I am sure that God will give yu some solution about Punya.She will be normal soon.I will pray for her. Reply Anusha Aththanayaka September 23, 2021 When god looking for best place for punny he selected her parents that because only that two can give hapnyness for her be proud to be gods sclection Reply Sophie September 23, 2021 Punya is so well loved and so well taken care of. Each of them look at her with so much love in their eyes ❤️ Beautiful family! Reply Michael Benson September 23, 2021 What an inspiration: "Never lose hope." Thanks for asking that question, Chris, and thank you to Punya and Ananya's parents for being a positive example to so many! Reply Nocturnal RS September 23, 2021 "She is a human being, we don't understand her but she understands what's happening to her" That is big empathy! Reply Nocturnal RS September 23, 2021 Try cbd! Reply Nocturnal RS September 23, 2021 Everyone has their purpose, some people aren't able to communicate but their perspective but could be life changing to all of us. Reply 3 Peaks September 23, 2021 Hopefully soon Punya will find some type of treatment or medication to stop or atleast reduce her seizures. If something is out there, we know her parents will find it. Stay strong- 🌷Help for Punya Reply Leave a Reply Cancel replyYour email address will not be published. Required fields are marked *Comment * Name * Email * Website Save my name, email, and website in this browser for the next time I comment.