Living with epilepsy & where we are today!



Here is the process so far with my daughters condition!! I hope this helps those that are struggling with epilepsy, caregivers or services as some education.

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42 Comments

  1. Elle, your whole family is made of soldiers. I can’t imagine having to go through all this, including being refused help by some doctors. I think all of us would just like to say to you that we hope things get better and that you find the right path for Gray. That’s amazing that she’s ok with taking medications, especially some of the rough ones she’s on.

  2. Elle – thank you so much for continuing to share your journey with us!
    My daughter was diagnosed with MS a few years ago and it’s been quite a journey! We’ve been down the medical route – she has 2 neurologists and our wonderful family dr but recently started seeing a naturopath to look for alternatives -she just wants to feel better!
    What’s really wonderful is that her main neurologist is incredibly supportive of the naturopathic route and is working with our naturopath in a team effort- this is rare in the western medical community and we are so thankful 🙏
    You are such a strong wonderful momma! Keep fighting the good fight! We are our kids warriors
    Much love, prayers and hugs ❤️🙏❤️
    Xo Tammy 🇨🇦

  3. Elle, you are an amazing person. Thank you for sharing this journey. I hope one day the “alternative” way of healing is widely accepted. It has been proven to work over and over again. Keep up the fight! Sending love and healing vibes to you and your entire family! Again thank you so much for all of this information and sharing this. It will most definitely help so many people.💕

  4. I find this video so interesting…. My son was diagnosed when he was 16. He is almost 18 and we are still struggling…. We do feel it may have something to do with his gut. He also has autism. You are a fantastic mom ❤️

  5. Hi my love, 100 percent you can never never just listen to a doctor say there's nothing more we can do.
    All I know is that you are helping your child and you will never give up or in to those ney sayers. Just bc they are doctors, that certainly doesn't mean they are right. You are going to be helping the next person, god forbid, from all that you have been through!!! Whenever Grey pops her head into your video I see such a happy little girl. You guys are wonderful parents.
    When you said Mold I was shocked!!! When the people come to test a house for mold they wear hazardous suits with a complete covered head . It most likely was in either one of the houses you lived in before.
    The people living there now are most likely as well exposed to mold.
    You and your husband definitely have to be tested. It's a must.
    I'm so sorry that you are going through all this with your baby girl.
    Sending you a big hug, just wish I could give you one in person right now. Stay strong and safe !!!

  6. Rock star Mom!
    So happy to hear you’re treating with a mixture of both western and holistic- and not stopping until you get answers. I know getting to the root/cause is important- but since your sweet angel has whole body inflammation- have you heard of/tried using Moringa Oliefera? It’s a botanical that among other things, has 32 NATURAL anti inflammatories that the body recognizes as “food”, so it doesn’t harm the liver as other synthetics can. Plus, it’s anti bacterial and anti viral. Since it’s recognized as food, you also can’t ‘overdose’ it, you use as much as the body needs to achieve the results you’re looking for. It also called the MIRACLE TREE, because it’s contains vitamins, minerals, and protein! I was using turmeric for its anti inflammatories, but that comparatively is like bringing a knife to a gun fight!!
    Start by asking Google, Siri or Alexa- “What’s the most nutritious botanical in the world?” That should get you started on researching this incredible plant…

    Sending love and light to you both 🙏

  7. A mother's love knows no bounds! It is so wonderful that you have looked further than Western medicine…healers have existed for ages before WM…most people blindly trust today's "medical"solutions and look no further. Your story can and will help so many think about health and healing in a different light. Not all journeys in life are perfect but they are ours to take and learn how to overcome obstacles. You are an amazing mom and your family is so blessed to have you fighting on their team!!💖

  8. Thank you Elle for giving us the update on your sweet Daughter Grey. Praying for her complete & full healing & wellness. You ARE a Warrior Momma Bear leaving no stone unturned! God bless your family! 🙏💞

    I am so happy that you have an expanded consciousness to "inner-stand" all the things at play when it comes to health & healing. I remember back when you first starting telling us about Grey's healing journey, the first thought that came to my mind was that she was v*•a°cc•i^n°e injured. After studying this topic for 25 yrs, & following THE Experts on this issue I've learned a LOT! Even the "Vit-K" jab is injurous bc of all of it's Toxic ingredients it starts damaging the immune system from birth, & then all the other's increasingly damage the immune system. And as you probably well know by now, the gut is 75% of immune system, so when it becomes permeated, & leaky gut syndrome progresses it wreaks havock on the entire body. This also compromises the Vagus Nerve which runs from the gut, all the way up to the brain. And to add insult to injury, the blood/brain barrier gets permeated with Toxins such as Heavy Metals, Aluminium, Thimerosol (Mercury), & Polysorbate-80 etc. I'm sure you are fully educated on this already Elle, I just wanted to mention it for the "Squad" who might read this, hoping they will research all this & hopefully more children will be spared!

    It's so Awesome that you have an "inner-standing" about how Holistic Modalities heal the human body. Heals animals too! Sound Therapy, as you mentioned is wonderful to heal the body, mind, & soul! Check out Sapien Medicine, & Quadible Integrity channels here on YT. Also, research into Eileen Mc Cusack, who is the pioneer of "Healing The Biofield", via tuning forks.

    Here are a few other incredible resources you will surely want to know about!

    **Nano Soma (Metadichol)
    This product has some amazing science behind it.
    ➡️Explained in layman's terms
    https://youtu.be/QtHzVonmH0s

    **Nano Soma (Metadichol)
    The Science Links.
    ➡️https://www.researchgate.net/profile/Palayakotai-Raghavan

    **(Tesla Bio-Healing Center)
    ➡️https://www.teslabiohealing.com/pages/book-a-med-bed-session

    **This center also offers for sale Tesla home healing devices. However, for serious medical conditions, visiting the center First for evaluation & med bed healing is imperative.

    **Scalar Light (Tesla Remote Healing)
    ➡️https://www.scalarlight.com/

    I pray these resources will be of great help to your precious daughter. I'm holding Grey in the light. 🙌

  9. True I truly believe gut health can & Will affect the whole body !
    Looking forward to more info on CBD & THC I used both before
    God Bless Miss Gray prayer for you sweetie 🙏❤ Prayers for mom & dad also 🙏 love from Georgia

  10. Elle thanks for sharing your story! It’s so exciting to hear about Greys progress! Good for you and all your hard work. Hey when you open that wonderful multifunctional medical facility, I’ll help you market it, I have experience😉

  11. I am so happy to hear Gray is doing better honey I mentioned about getting her on CBD and Marie gave me the Dickens for itbut I still hoped it would help you I heard about a little girl who had grand mal seizures and her mother was just getting someone to go to Humboldt county and take some kind of oil out of it in a glass tube and bring it to her so she could use it on her is a doctor I really don't know what about it I just knew that it had help this other little girl and I found out that the Bible make that oil that they give you as a blessing oil healing oil has cannabis in it that was God's gift to longevity and healthy mind and body and it was mis wrote in our Bible but the Hebrew Bible had it right but it's an anointing oil and there's a whole recipe for it if I come acrossed it again I'll send it to you much love and blessings to you and you and love your and I love dr. Been I have been on his supplements and taking his oils cuz I have irritable bowel syndrome so I know what that's like but much love to you and yours I'm so happy happy happy to hear how good she's doing I will pray for her and her mommy and daddy

  12. Omg, Elle. My heart is breaking for all your family has been through. But, how lucky Gray is to have such a wonderful mother that won’t take no for an answer. Please share what you have learned further. Maybe a book? Nonprofit of some sort? I’m sure there are other parents that need direction. And, I know of Chris Bear!!! I am a Reiki Master, and very active in the holistic community. I would love to send reiki to Gray long distance if you give me a thumbs up. Meanwhile, I will pray for healing for your precious little girl. You are in good hands with Chris. He’s a gentle, loving soul (and a former makeup artist!). I will send healing energy your way as well. Please take care of you, too. I can only imagine how exhausted you must be. Love, light and healing energy coming your way! 🙌🏻🙏🏻👍🏻

  13. Thanks for the video. Turns out that our house had mold in it for who knows how long. We had our pipes fixed and the mold taken care of. I had no idea that it could live in your body for years. You got me thinking about possibly getting checked. Thanks.

  14. YOUR A DAMN ROCK STAR WOMAN! WOW THIS WAS A BAD ASS STORY OF A MIRACLE MOM AT WORK IN THE NAME OF PURE LOVE. ABSOLUTELY HEART WRENCHING AND ABSOLUTELY ABSOLUTE LOVE FOR ALL OF TIME. YOU SURE DO EMPOWER WOMAN AND SHARE WITH US THE TOOLS TO LOVE OURSELVES, OUR SKIN, SHOW US WHAT PURE LOVE OF FAMILY IS AND WHAT BEAUTIFUL LOVE FOR A CHILD IS FIRST HAND. YOUR SO AMAZING. NOONE ELSE LIKE U ANYWHERELSE YOUR TRULY A GIFT FROM GOD TO BLESSS ANYONE WHO FINDS U. EVEN FOR A MINUTE U LIGHT UP LIVES AND HEARTS. YOUR FREAKEN AMAZING TY FOR THIS STORY. UNBELIEVABLY YOUR DAUGHTER IS SO SO SO SO SO SO SO SO SO SO SO SO SO SO LUCKY TO HAVE YOU AS HER MOTHER. YOU HAVE NO IDEA HOW MANY PEOPLE WOULD DIE TO HAVE A PARENT LIKE U WHO CARES SO EXTEMELY MUCH. ITS CRAZY I IMAGINE >60%OF THE POPULATION. I WOULDNT EVEN KNOW HOW TO SIT HERE AND IMAGINE HAVING A MOM LIKE U. SO WOW. YOU SHOULD HE DAM PROUD OF YOUR ACCOMPLISHMENTS AND HOW FAR YOU'VE COME. AND BE SO SO SO PROUD OF THIS PATH YOU'VE BROUGHT YOUR SUPER SICK BABY GIRL DOWN. I CANT IMAGINE HOW HARD THIS HAS BEEN FOR YOU AND ALL OF THE NO'S YOUVE HEARD ALL OF THE DISAPPOINTMENTS AND HEART BREAKING HURDLES YOU'VE RAN INTO AND THEN GOTTEN OVER. YOUVE NEVER GIVEN UP, YOUR SO DETERMINED AND COURAGEOUS AND HONEST AND HARD WORKING N GOD HELP THE PERSON THAT TELLS YOU NO OR TO JUST ACCEPT THE CIRCUMSTANCES AND DEAL WITH IT. WTF. ID LOVE TO SEE THAT HAPPEN AND YOUR RESPONSE BACK AND THEN WATCH THEYRE FACE WHILE THEY REALIZE HOW STUPID THEY SOUND AND ARE TOTALLY HUMILIATED FOR THEYRE COMPLETELY WRONG ABUSE OF POWER . AND THEY SHOULD BE ASHAMED AND SHAMED FOR WHAT THEY TELL PEOPLE. MY FRIEND WAS TOLD HE'D NEVER WALK AGAIN AND SURE AS SHIT HES A DAILY RUNNER NOW. PEOPLE HAVE BEEN TOLD THEYLL NEVER SEE AGAIN AND TO DEAL WITH IT. WHAT KINDA DOCTORS JUST TAKES PEOPLES HOPE AWAY LIKE THAT. DOCTORS SHOULD KNOW BETTER THEN ANYONE THAT LIFES FULL OF MIRACLES AND THERE IS A DIFF MORE SPIRITUAL ENERGY THAT IS ALWAYS HELPING US AND GUIDING US AND MIRACLES HAPPEN EVERYDAY TO ANYONE THAT BELEIVES. YOUR A LIGHT IN THE WORLD THANK U FOR SHARING THIS WSS SO BEAUTIFUL

  15. Wow! Grey is an amazing little girl! Beautiful like her mama! This was such an informative video. You guys have gone through so much. You could be a dr! I hope you get all the answers! I’m praying for good health for everyone! Much love! 💖❌⭕️😘

  16. Elle, you are awesome! 💜 You are doing exactly what I would do in your situation. It is so hard to go the natural route with mainstream medical doctors today, but I think the world is shifting very slowly towards natural healing. Your efforts have paid off and I applaud you for your strength and determination. I can’t wait to hear all the updates on your sweet baby girl! 💜

  17. What a phenomenal video! Thank you so much for giving people hope,education,and love. Your journey with your daughter is positively inspiring. Your message is one we all need to hear. I can’t help but believe that you were given this challenge because you are the perfect
    Person to give inspiration and encouragement. I 100% believe that your daughter is in the process of being healed! If I can offer one other “treatment” to your daughter it would be the power of prayer. When you kiss your baby girl each night put her in God’s hands. He is the ultimate healer. Through Him all things are possible. God bless your family. I look forward to the day when your daughter is fully and completely healed.” Lots of love from me to you”❤️
    .

  18. Elle you are an amazing mom. Thank you you for sharing your journey of you beautiful baby.. just wanted to suggest to look for Dr. Gundry books. He is an amazing source on the microbiome and leaky gut.

  19. Thank you for the update on Grey I've often wondered how she was doing. I love that you are looking at all options for healing her. I just recently had a friend mention she's had quite a bit of success with TMS therapy. I wonder if this might be an option? I've been reading up on it and find it quite fascinating as it's a realignment of the brain functionality.. my prayers are with you and your family on this journey of healing 💗

  20. Our epilepsy journey started when my daughter was 5-yrs old… it was only on her 22nd that it was finally given a name: LENNOX-GASTAUT SYNDROME, that's why it was intractible. It's a progressive type of epilepsy that's why it keeps evolving… your epileptoligist might want to explore this.
    Get well baby girl💗

  21. Thank for educating us.
    My nephew has gone thru so many doctors, meds and supplements. All doctor's would be wise to listen to Mama Bear. May all you are doing lead to healing.
    My nephew who has down syndrome and seizures have made it very complicated, and yet he has lived happily far beyond what was predicted and is
    A great blessing to his family. All of his cousins have become compassionate helpers.
    Another encouraging story is of my daughter in law who has not had a seizure in about 4 years and in July gave birth to our perfect little grandchild. God help and bless your little girl until she received complete healing. Bravo to Mama and Papa Bear who persevere on her behalf.

  22. wow, Elle. this is an incredible journey & thank you so much for sharing it all. it is highly impressive that you still continue to provide all your great content amidst all of this research and struggle. 💚🙏

  23. Elle, I do believe someday that type of holistic medical care will exist. I'm not sure if I'll be around, but I do believe it will happen. When that day comes, humanity won't believe "the way it was". Thank you for sharing your story. I know you will help many because of it. My heart goes out to you all and I will keep your daughter in my prayers. 🙏❤️

  24. The knowledge, determination and love of your daughter…,, it’s amazing. She will be healed…..Elle you are such a strong woman…..you’re mom….our kids are our world. Sending you hugs 🤗

  25. Helpful to hear this Elle. You are so knowledgeable & proactive. It's amazing. My dtr had a seizure out if the blue last yr at age 18. She's on Lamictal now. I'd like to get in touch with one of the practitioners you used. Not sure who to contact first.

  26. Thanks for sharing . I have a son that is 19 had brain damage at birth. He has the brain of a baby I had him get all the vaccines then by 2 he was nonverbal. I wish i could afford alternative medicine. I wish there was more help cant have a "normal life".

  27. This was so helpful. My 22 yr old daughter has had seizures every 6 months or so for the past three years. She’s on keppra. Gives us some ideas to try. Thank you and best wishes for gray and your family. You are inspiring.

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